Today I’m opening up about my digestive health struggles and post-infectious IBS after a gut infection with C. difficile. Everyone has a story to share that’s taught them one thing or another, and this is one of my stories.
Today I wanted to open up for the first time about the details and story of my gut health. I’ve mentioned IBS before but haven’t shared what that’s looked like for me over the past few years. To be completely honest, I’ve felt pretty nervous to talk about it all because it’s so personal. But at the same time, I’ve really wanted to share my story because I know so many of you have struggled with digestive health issues, too.
Most importantly, though, I had to make a big perspective shift. I realized after years of shaming myself for not being in “perfect health” as a holistic nutritionist and as someone who lives a healthy lifestyle, that no person on this planet is in perfect health 100% of the time. We all have things we struggle with or have struggled with, and that’s what has propelled me to share my story.
My Gut Health Story
In the Fall of 2012, I was handed a slip that read: Clostridium difficile Gastroenteritis.
C. diff is a species of bacterium that can lead to life-threatening infection and inflammation of the colon, and is most often contracted in hospital settings after the use of antibiotics. As you may know, antibiotics kill bad bacteria, but they also kill off friendly gut bacteria which is what creates the perfect opportunity for C. diff to proliferate.
A few months prior I was on antibiotics for an unrelated infection, completely unaware of what the next few years of my life would hold.
I started dealing with severe diarrhea for several weeks, upwards of 8 or more times per day, and an inability to eat anything without a stitching, slicing pain throughout the entire span of my intestinal tract. My doctor prescribed an antibiotic, followed by a probiotic, to eradicate the C. diff. I immediately improved and was so relieved that I could finally eat again and that I was finally feeling better. Or so I thought.
The Start of My Food Intolerances
As time went on, I began having trouble tolerating many of the foods I’d eat. Although I was no longer having diarrhea, things just didn’t seem normal like they used to. I broke out in hives regularly, my stomach was upset more often, and I was frequently bloated. A follow-up test with my family doctor showed no signs of C. diff., and instead, I was told I had post-infectious IBS and sent on my way.
Having just graduated as a holistic nutritionist, I knew that there were many things I could do to support my gut. I took extra probiotics, digestive enzymes, and I followed a paleo diet initially because dairy, grains and legumes were absolutely not okay anymore. I explored various digestive protocols on my own terms and I eventually began to feel pretty good, so I started eating some of the foods again that I previously eliminated, even though I still wasn’t digesting optimally.
The Flare Up
In the Spring of 2016, I remember it so vividly: I was drinking tea one evening, my stomach started to feel upset, and I had to abruptly run to the washroom.
I thought I had the flu, but two days passed, two weeks, two months – severe diarrhea 8, 9, 10 times a day. Every single day. I couldn’t eat anything without having to run to the washroom. I had to leave work, I had to leave gatherings, I developed a phobia of food, and I began losing weight that I couldn’t afford to lose, being an already small person.
I started to think I was having a C. diff relapse, which was my biggest fear on the face of the earth.
Another trip to my doctor yet again thankfully showed no trace of C. diff., but things were not correcting themselves so I was referred to a gastroenterologist. From there, in the summer of 2016, I underwent multiple procedures to test for Crohn’s, Celiac disease and other related conditions that involved blood tests, a colonoscopy including biopsies of my large intestine, an endoscopy, and a barium enema x-ray that was hands down one of the most uncomfortable and awkward experiences of my life.
The results were vague and as follows: you have some inflammation, your colon is abnormally spastic, and everything else looks pretty much fine. I was told I had Irritable Bowel Syndrome, and that was that. I was also told I had a ‘redundant colon’ which wasn’t an issue, just a random fact and apparently why they weren’t able to properly conduct the colonoscopy.
I was in serious denial for a period of time. I refused to accept that I’d have to live with this relentless diarrhea, urgency, and abdominal pain every single day for the rest of my life, even though that was already my reality. I remember constantly, frantically waiting for this to all just go away and return to normal. I kept wondering when it would resolve itself and asking why it hadn’t yet, to which I remember the gastroenterologist say:
“This may never go away, Meghan. It’s probably time you see this as a chronic condition”. I cried.
The Road to Recovery
In September of 2016, after nearly 7 months of the return of debilitating symptoms, I began following the Specific Carbohydrate Diet after reading the book Breaking the Vicious Cycle, along with being strictly paleo, which yielded notable improvements. I also began working with a naturopath and a couple other practitioners throughout 2017 who helped rule out bacterial overgrowth and leaky gut. I was put on a few rounds of antimicrobials, and other classic digestive supplements to reduce inflammation and promote healing.
I also began following the Low FODMAP diet in 2017. I’d heard of this diet before and only barely experimented with it, but when I began following it strictly, it improved my symptoms significantly. Their app has been a life changer for me.
Through the work I’ve done on healing my gut and now being so aware of what foods I can and cannot tolerate, I have come a very, very long way. I no longer have diarrhea 10 times a day like I did a couple years ago, and most importantly, I no longer have a fear of food as I can tolerate a lot more.
I’m still careful with what I eat and what I put into my body, but I’ve been able to find a balance that works well for me.
Update: For a 2020 update of my gut health, please read my updated blog post IBS: My Gut Healing & Symptom-Free Journey.
Thank you so much for reading, and I hope you feel a little less alone if you’re going through, or have gone through, something similar.
I’m so glad that the light is streaming into the proverbial tunnel for you.
I hope that your health continues to improve!
Thanks so much Sarah. It definitely hasn’t been easy! But everything has worked out well 🙂
Meghan, I am living your story as I type this 🙁 I was diagnosed with CDiff about a month or so ago and a week after finishing a round of dificid, I had a relapse. I was put on Vancomycin for two weeks and finished it almost two weeks ago. Last week I got the stomach virus and after that have had several type “flare ups”?! Not sure if it’s the cdiff coming back or maybe a post IBS problem?! I feel awful.
Thank you for sharing your story.
Hey Tara. Oh man, that sounds awful! I never had a true C. diff relapse but I can 100% relate to horrible ongoing issues and flare ups. Thanks so much for reading. Stomach viruses can definitely feel like a relapse (I had a flu recently) but I hope the C. diff does not return for you!
Please follow up with your doctor! I am finishing up my 3rd course of antibiotics for recurrent c diff infection! It all started after a round of clindamycin for a root canal. I have never been so sick… my symptoms started 10 days after my last dose, fever, chills, abd. pain, diarrhea. I completed a 10 day course of vancomycin, after 7 days the diarrhea started again, I wasn’t as sick as I was initially, I completed a 10 day course of dificid and again after 7 days the diarrhea started again, I am now finishing an 8 wk tapered and pulse dose of vancomycin. I only have 2 doses left and I am keeping my fingers crossed that the diarrhea doesn’t return again because the next step is a fecal transplant. I am a nurse and have only been able to work 5 days since August because the policy in the hospital will not allow me to work until I am off antibiotics for 48hrs and symptom free. I was able to return to work for a couple of days in between my antibiotics. It has been a long and frustrating road for sure!
Thank you for sharing I am basically dealing with the same issues as you. I guess it’s up to ourselves to heal our guts because most doctors don’t seem to understand. I’m so tired of not knowing how I’ll feel when I wake up.
Hey Julia. I hear you – it is beyond frustrating to feel like we can’t get any straight answers. A lot of our healing journey is certainly up to us. I can 100% relate to not knowing what the next day will bring in terms of symptoms… that’s gotta be one of the worst feelings! I’ve just continued to seek information and guidance from sources I trust (practitioners, etc.) and always listen to my body. We’re in this together! 🙂 xoxo